Mission & Vision

parachute.perry.7.15OUR MISSION

To raise awareness and advocate for improvement in diagnosis and standards for surgical treatment of primary hyperparathyroid disease.

PURPOSE

To inspire patients, doctors and mental health care professionals to become educated about the symptoms, diagnostic process and the risks associated with the “wait and see” approach, as well as   advocate for the most advanced surgical techniques available to become the standard of care.

OUR VISION

We are working to create change so that….

  • Primary hyperparathyroid disease is clearly understood by the medical and mental health communities and is considered as a possible root cause when physical and/or mental symptoms associated with the disease are present.
  • Medical professionals are familiar with the various biochemical presentations and associated symptoms.
  • Appropriate blood tests are ordered and values are properly evaluated to determine if calcium is high and outside of the tight range that is considered normal and/or parathyroid hormone levels are elevated.
  • Normal range for calcium values are consistent from lab to lab and take into consideration a patients age, with 10.1 being the high end of normal for adults age 30+
  • The asymptomatic label is lifted and the wide range of symptoms patients do experience will be recognized as being related to pHPT.
  • Medical professional are educated and clearly understand that those patients labeled as asymptomatic, as well as symptomatic patients, benefit from surgery.
  • The medical community is aware of the most advanced surgical techniques available to perform parathyroidectomies and surgeons are highly trained to execute the appropriate technique(s).

To learn more read our ACTION PLAN

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IMPORTANT NOTE: There are a number of reasons why blood calcium values may be high. The American Association of Endocrine Surgeons is a reliable source of information for learning about these various reasons. As primary hyperparathyroid disease is the most common cause of high blood calcium, and this diagnosis was the root cause of our symptoms, this site will only addresses primary hyperparathyroidism from patients’ perspectives.

2 thoughts on “Mission & Vision

  1. My husband had a parathyroid tumor removed Feb. 7, 2012. At that time ot was producing over 4,000 PTH units. It was estimated to be over 10 years that he had it. The removal did improve his life, but too much damage had been. His kidneys started failing and he developed ulcer and gastric cancer.
    He passed away June 7th, 2016. I don’t know whay death certificate will give as cause of death, but I believe it was from complications of the parathyroid tumor.

    Like

    • We are so very sorry for your loss! Our thoughts are with you during this difficult time. Thank you for taking this moment to share his story to help us educate others, not only of the debilitating symptoms, but the long term effects of patients going undiagnosed for years and/or the “watch and wait” model of care that so many medical professionals still ascribe to. If we all work together we can create change.

      Like

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