To raise awareness and advocate for improvement in diagnosis and standards for surgical treatment of primary hyperparathyroid disease.
To inspire patients, doctors and mental health care professionals to become educated about the symptoms, diagnostic process and the risks associated with the “wait and see” approach, as well as advocate for the most advanced surgical techniques available to become the standard of care.
We are working to create change so that….
- Primary hyperparathyroid disease is clearly understood by the medical and mental health communities and is considered as a possible root cause when physical and/or mental symptoms associated with the disease are present.
- Medical professionals are familiar with the various biochemical presentations and associated symptoms.
- Appropriate blood tests are ordered and values are properly evaluated to determine if calcium is high and outside of the tight range that is considered normal and/or parathyroid hormone levels are elevated.
- Normal range for calcium values are consistent from lab to lab and take into consideration a patients age, with 10.1 being the high end of normal for adults age 30+
- The asymptomatic label is lifted and the wide range of symptoms patients do experience will be recognized as being related to pHPT.
- Medical professional are educated and clearly understand that those patients labeled as asymptomatic, as well as symptomatic patients, benefit from surgery.
- The medical community is aware of the most advanced surgical techniques available to perform parathyroidectomies and surgeons are highly trained to execute the appropriate technique(s).
To learn more read our ACTION PLAN
IMPORTANT NOTE: There are a number of reasons why blood calcium values may be high. The American Association of Endocrine Surgeons is a reliable source of information for learning about these various reasons. As primary hyperparathyroid disease is the most common cause of high blood calcium, and this diagnosis was the root cause of our symptoms, this site will only addresses primary hyperparathyroidism from patients’ perspectives.