WE ARE AVAILABLE FOR SPEAKING ENGAGEMENTS:
Community and Group Meetings: We are available to speak at your next community meeting and will share our personal stories to educate and inspire others to become advocates for their own health.
Medical Professionals: We reach out to doctors and are available to talk one-on-one, speak with an office group, present at healthcare meetings or conferences to share about primary hyperparathyroid disease from the patient’s perspective. A patient being told they have a “mild” case of hyperparathyroid disease is nonsense and we know that first hand. There needs to be greater awareness in the medical community as to the profound impact a timely diagnosis and successful surgical removal of the adenoma(s) has in improving a patient’s quality of life. A common question patients are asked after surgery is, “do you REALLY feel all that different? ” The answer is a resounding YES!
Mental Healthcare Professionals: We are excited to share our stories with those in the mental healthcare professions. Many patients seek help from mental healthcare professionals because many of the symptoms that present do effect the patient’s mental health. Patients often experience extreme fatigue, depression, brain fog, anxiety, and panic attacks. It is our intent to raise awareness in hopes that mental healthcare professionals will consider primary hyperparathyroid disease as one possible root cause of these debilitating symptoms, will mention this as a possibility to these patients and suggest that they see an informed Endocrinologist for diagnostic work.
We have shared our stories and educated at these events…
- November 4, 2015 – The Bone Girls Club, Tucson, Arizona
- November 7, 2015 – Miraval Resort and Spa during Escape with MORE Magazine
- July 20, 2016 – Tampa, Florida Meet-up at Courtyard Downtown
Contact us to inquire about available for your meeting/event.
WEBSITE WITH BLOG:
We are thrilled that you found our website and blog. It will be kept up to date with interesting articles and stories that will continue to inspire patients, doctors and mental health care professionals to become educated about this disease once thought to be “rare”, but more likely has simply gone undiagnosed or dismissed as a “mild” case.